~Reflux update~

This has been copied/pasted from facebook.

First off I'd like to extend my deepest thanks for everyone's concerns, advice and words of encouragement. This has not been easy for myself or for Madelyn.

We went to the GI specialist on Thursday at 2pm, who happened to be the Aprn. We met with her and described everything. She also concluded that Madelyn has reflux. Fine. She gave us some cards to gather poopie samples to use to test for a food allergy with. She did tell me to not change my diet in the interim, as if I exclude dairy and soy from my diet they are concerned I may not be getting adequate nutrients, so if I needed to start eliminating things, to wait for the poopie results and then meet with the nutritionist.

She also prescribed Pepcid and told us to come back in 4-6 weeks. Fine. She was very clear that the dose she was giving her was .07ml twice a day, and repeated it several times so we'd know. Fine. She writes down on the scrip, .7ml twice a day. I noticed that after I got outside..whatever, I gave it to CVS anyways. They call me at home and say we can't fill this because .7ml twice a day is 10 times the recommended daily dose for an infant. So I was told to contact the doctor on call to clear up the misunderstanding. The doctor on call said .7ml is too much and said it should be .5 ml twice a day. Fine.

Jeff goes to pick up the scrip and CVS says they need to verify with the doctor that he did indeed say .5ml because .5ml twice a days still 3 times the recommended daily dose for an infant. Good heavens. So we ask, how much should we be giving her then. The pharmacist says no more than .36 ml once per day. Fine. So we go with that, seeing I'd rather give her too little than too much, until I can talk to her regular pediatrician.

I called her after we got home from our lovely morning at the fruit stand, and told her the story, also mentioning to her that I do not feel comfortable going back to this the Aprn citing that if she can't get the dosage correct for a prescription, how can she get the diagnosis correct. The pediatrician agreed with me and told me to call them back and insist Madelyn see a doctor for her follow-up and not the Aprn. She also did the math and said that the .5ml twice day was correct based upon mg/ml in the suspension.

So we go back to the pediatrician on Nov 13 for a weight check, and back to the GI Doctor Dec 10th. And then at some point get results back to see if there is a food allergy.